“They’re On The Boat”

Initially, it was hard even to figure out which end was up, and we just went day by day trying to figure everything out. After a few months, however, we settled into figuring out a routine that would work for us so we could get mom to all of her appointments while also keeping track of shopping and meal prep and everything that needed to be maintained around the house. Continue reading “They’re On The Boat”

Our Family Fauci Story

After a few more days, mom and I were scheduled to meet with the neurology team to discuss whether he would ever come out of this coma and what our best next steps should be in caring for him (i.e., “do we bring him home?”, “does he need surgery?”, “what is his overall prognosis?”). From his team at the Brigham, we learned that multi-organ failure was a symptom of Wegener’s and that there were less than 500 people in the United States who had been diagnosed with it. It was referred to as an “orphan illness.” Continue reading Our Family Fauci Story

Delft

“It’s delft,” she responds.

“Delft? What the hell is delft?” I’ve never heard of this color. As I drive the cart a little further, I quickly scan my mind looking for the place that has all of the colors in a  Crayola 64 pack of crayons. I’m thinking midnight blue, navy blue, sky blue, blue-green, periwinkle and then off to the land of lime green, bubble gum and burnt sienna. Continue reading Delft

“Home is The Sailor, Home From The Sea”

The title “home is the sailor, home from the sea” is from the poem Requiem by Robert Louis Stevenson. This was how my mom would greet me whenever I would return home after being away at school.  When my parents sold their house, they asked me if there was anything I wanted to take. The one thing I really wanted was a picture (this picture above) … Continue reading “Home is The Sailor, Home From The Sea”