Life Lessons From Covid Puzzle Time

There are times when I am frustrated, times when I want to take the puzzle apart before it is complete and just put the pieces back in the box for another day instead of taking a long hard stare at colors, shapes and textures. Easier to just say “forget it, I’ll do this later.”
It’s quite the metaphor when thinking about these last several months. Continue reading Life Lessons From Covid Puzzle Time

Our Family Fauci Story

After a few more days, mom and I were scheduled to meet with the neurology team to discuss whether he would ever come out of this coma and what our best next steps should be in caring for him (i.e., “do we bring him home?”, “does he need surgery?”, “what is his overall prognosis?”). From his team at the Brigham, we learned that multi-organ failure was a symptom of Wegener’s and that there were less than 500 people in the United States who had been diagnosed with it. It was referred to as an “orphan illness.” Continue reading Our Family Fauci Story