“They’re On The Boat”

Initially, it was hard even to figure out which end was up, and we just went day by day trying to figure everything out. After a few months, however, we settled into figuring out a routine that would work for us so we could get mom to all of her appointments while also keeping track of shopping and meal prep and everything that needed to be maintained around the house. Continue reading “They’re On The Boat”

Our Family Fauci Story

After a few more days, mom and I were scheduled to meet with the neurology team to discuss whether he would ever come out of this coma and what our best next steps should be in caring for him (i.e., “do we bring him home?”, “does he need surgery?”, “what is his overall prognosis?”). From his team at the Brigham, we learned that multi-organ failure was a symptom of Wegener’s and that there were less than 500 people in the United States who had been diagnosed with it. It was referred to as an “orphan illness.” Continue reading Our Family Fauci Story