Initially, it was hard even to figure out which end was up, and we just went day by day trying to figure everything out. After a few months, however, we settled into figuring out a routine that would work for us so we could get mom to all of her appointments while also keeping track of shopping and meal prep and everything that needed to be maintained around the house. Continue reading “They’re On The Boat”
I felt sad that our afternoon had ended, but it was getting late, and mom would be cooking dinner by the time we arrived.
It was during our walk back to the house that dad happened to mention that the fish didn’t have any teeth.
“What???” I asked him. “WHAT????” Continue reading Gone Fishing
I took this photo sometime around 2010 ish. One of the benefits of working 12-hour shifts every Friday, Saturday and Sunday was that around 6:00am on a weekday, I could get up, grab my camera, drive into DC and get some photos of some of my favorite places without a lot of people around. On this day, I was leaning against one of the stones on the back of the WWII memorial and looking through my viewfinder – totally in awe of the reflection of the Lincoln Memorial and the history of the Washington DC area. I now wonder about … Continue reading What Will Be the Legacy of Our Nation?
After a few more days, mom and I were scheduled to meet with the neurology team to discuss whether he would ever come out of this coma and what our best next steps should be in caring for him (i.e., “do we bring him home?”, “does he need surgery?”, “what is his overall prognosis?”). From his team at the Brigham, we learned that multi-organ failure was a symptom of Wegener’s and that there were less than 500 people in the United States who had been diagnosed with it. It was referred to as an “orphan illness.” Continue reading Our Family Fauci Story
On this day – it’s about the funny quirky stuff. If mom was still alive the stress would have started about a month ago – just before her birthday. The phone would ring and she would say “I can’t find my calendar. Continue reading The Funny, Quirky Stuff
We discuss how relationships are interesting like that – how you really see someone’s strength when they are faced with adversity. He smiles upon hearing this “yes, she was quite a fighter,” he says. Continue reading I Found A Christmas Elf At Walmart
On this the 18th anniversary of 9/11/01 I wish we could have a national (if not a global) debrief on where we all were and the lessons we learned. Continue reading “How Do I Cope With The Fact That I Can’t Keep My Children Safe?” – My Lesson from 9/11/01
The “it” was the Melanoma that had showed up as a spot on the back of my leg. In a place I couldn’t see, in a spot I wouldn’t have thought to check. Because I wasn’t really paying attention anyway..to that spot..on the back of my leg. Continue reading “What’s That Spot On The Back Of Your Leg?” – My Adventure With Melanoma
In a way that I really can’t explain, there’s something reassuring about this teeny little kitten just hanging out with mom and dad that always makes me feel a little bit better and more reassured. Continue reading “I’ve Got The Cat!”
“It’s delft,” she responds.
“Delft? What the hell is delft?” I’ve never heard of this color. As I drive the cart a little further, I quickly scan my mind looking for the place that has all of the colors in a Crayola 64 pack of crayons. I’m thinking midnight blue, navy blue, sky blue, blue-green, periwinkle and then off to the land of lime green, bubble gum and burnt sienna. Continue reading Delft
Whenever I moved, dad would always encourage me to find a good auto mechanic in case anything ever happened to the car. “You need someone you can trust,” he told me “and if you do, and they’re good, you can keep driving that car”.
Did I listen to him? – No. Continue reading It’s A Nice Car Driven By A Little Old Lady
It happened again just as it always has. 6:00 am, I have just fallen back asleep again after getting up and there’s Mercy, your friend, walking into a room where I am sitting and looking down at me with a big smile and a warm hello. Continue reading My 6:00am Wound Care Nightmare
The Cats Are Alright
While I knew that cats grieve like their owners, I never knew or realized how bad this grief process could be until I watched Trey for several days after mom’s death. Continue reading The Cats Are Alright
The title “home is the sailor, home from the sea” is from the poem Requiem by Robert Louis Stevenson. This was how my mom would greet me … Continue reading “Home is The Sailor, Home From The Sea”
I knew immediately what to keep and what to let go of. Other times, when I would open a closet or a drawer or look at a picture, I felt like I was going to throw up right then and there from the combination of sorrow and grief mixed with the intense sadness that went with missing mom. Continue reading A Legacy In A Quilt